Each day brings Jenn McNary another dose of hope and heartache as she watches one son get healthier while the other becomes sicker.
Austin was too sick to be included in the clinical trials for a promising new drug called Eteplirsen. “He can’t get into a chair, out of his wheelchair, into his bed and onto the toilet,” McNary told NBC’s Janet Shamlian.
Max, however, was exactly what researchers were looking for. He was put on Eteplirsen, and now he’s back to running around, climbing stairs and even playing soccer.
“It’s a miracle,” McNary said. “It really is a miracle drug. This is something that nobody ever expected and he looks like an almost normal 11-year-old.”
Eteplirsen is designed to partially repair one of the common genetic mutations that causes DMD. Even a partial repair may enough to improve life for boys struck by the condition, which results from a defect in the dystrophin gene.
NEW YORK (CNNMoney)
Starting in October, Americans without access to affordable health care coverage through their jobs will be able to shop for insurance for themselves and their families through state-run exchanges.
This week, the government unveiled the forms shoppers will fill out to apply for coverage through Obamacare. The government won’t start accepting and processing those applications until later this year.
The form for individuals is a scant three pages — a big improvement from the 21-page draft version circulated earlier this year. The revised application, unveiled Tuesday by the U.S. Department of Health and Human Services (HHS), asks individuals for little more than their personal information, Social Security number, citizenship, job and income details, and current health coverage. Income, citizenship status and other information will be verified by other federal agencies, according to Centers for Medicare & Medicaid Services, the HHS unit that is coordinating the process.
Those applying for family coverage will need to fill out an 11-page application that delves into additional details.
As the Obama administration girds for “glitches and bumps” along the path to full implementation of the health-care law, a new poll indicates many Americans are still unclear about the details of the new law and, in some cases, unaware it’s actually law of the land.
A whopping 42 percent of Americans do not know that the Affordable Care Act is, in fact, law. Included in that 42 percent — 12 percent believe it has been repealed by Congress, 7 percent think the U.S. Supreme Court overturned it, and 23 percent are unsure of its status, according to a Kaiser Family Foundation health tracking poll.
Heavenly Father, please hear the cries as our brothers and sisters suffer.